Through funding research, improving care and raising awareness we will make a difference in the lives of everybody living with Duchenne.

Through funding research, improving care and raising awareness we will make a difference in the lives of everybody living with Duchenne.

Our mission is to find a cure for Duchenne. We strive to achieve this by funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. We aim to make a difference in the lives of all living with Duchenne across Australia.


Our Model:

  • Sponsors fund most of the administration and running costs of the charity
  • We run campaigns and events to raise awareness and much needed funds.
  • We fund scientific research and clinical trials, Duchenne nurses in major childrens hospitals, and equipment to enhance quality of life of those living with Duchenne.

Our Core Values are:

  • We represent the Duchenne community in everything we do
  • We inspire purpose
  • We are all in this together
  • We always nurture our essence of integrity & loyalty in who we are and everything we do

Our mission is to find a cure for Duchenne. We strive to achieve this by funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. We aim to make a difference in the lives of all living with Duchenne across Australia.


Our Model:

  • Sponsors fund most of the administration and running costs of the charity
  • We run campaigns and events to raise awareness and much needed funds.
  • We fund scientific research and clinical trials, Duchenne nurses in major childrens hospitals, and equipment to enhance quality of life of those living with Duchenne.

Our Core Values are:

  • We represent the Duchenne community in everything we do
  • We inspire purpose
  • We are all in this together
  • We always nurture our essence of integrity & loyalty in who we are and everything we do

“We empower people to move beyond themselves towards feeling a greater sense of purpose, knowing that they are making a real difference.”

Elie Eid, Founder of Save Our Sons Duchenne Foundation

“We empower people to move beyond themselves towards feeling a greater sense of purpose, knowing that they are making a real difference.”