The Australian Neuromuscular Disease Registry (ANMDR) is an Australia-wide registry of people diagnosed with a neuromuscular disease.
It collects important medical information from adult and child patients across the country to improve the understanding of neuromuscular disease and accelerate the development of new therapies.
Save Our Sons Duchenne Foundation have played a critical role in the funding and development of the Australian Neuromuscular Disease Registry, which incorporates the content of our former Australian Duchenne Registry.
We urge all Australians living with Duchenne and Becker muscular dystrophy to register. If you are not sure whether you or your family members are registered please check directly with the Registry.
By having a database of patients with Duchenne and Becker muscular dystrophy, clinicians and researchers are better able to understand the underlying history of these conditions and how best to monitor and treat them.
Also of critical importance, recruitment into clinical trials and finding clinics and services will become more easily accessible through the Registry hub.
Details and information about clinical trials will be readily available and having a registered neuromuscular hub can increase our ability to attract more clinical trials to Australia.
Help us, help them – together we can make a difference.
Click the link below to find out more about the Registry and how you can register today.