patrick

About Patrick

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So far Patrick has created 24 blog entries.

Australian Duchenne Registry (ADR)

The Australian Duchenne Registry forms part of the Australian Neuromuscular Disease Registry housed at the Murdoch Children’s Research Institute in Melbourne.   The Registry’s purpose is to establish a database of all patients, children and adults in Australia diagnosed with neuromuscular disease, including Duchenne and Becker muscular dystrophy.   Through this database, we hope to

KEYNOTE REPORT – Update – January 2020

Save Our Sons Duchenne Foundation have commissioned the McKell Institute and Equity Economics to produce a report on the current issues with access to treatments, services and supports for children with Duchenne muscular dystrophy in Australia.    This important report will inform Government and key stakeholders on: The costs of health and other care for children