Save Our Sons

Duchenne Nurses Program - GIVE NOW

  • Amount $305,898.00
  • Target $410,000.00
  • Donors 191
One way to make a difference for those living with Duchenne in Australia is to support our Duchenne nurses program. In late 2015 we began developing this national program, to put a Duchenne nurse in every major children’s hospital in Australia. A full time Duchenne Nurses three year position cost on average $410,000.
Our Duchenne nurses program aims to:
  • Facilitates bringing clinical trials to Australia
  • Helps run clinical trials for Duchenne
  • Provides coordinated care for those living with Duchenne and their families
  • Ensures best practice clinical care is available to all, to enable those with Duchenne to have the best possible quality of life
  • Provide essential support to the doctors and specialists that care for those with Duchenne
  • Are a phone call away when families need help and support,
  • Assist families to join the DuchenneConnect Australia Registry

Nurses are at the heart of healthcare, and this is an essential program for those living with Duchenne and their families.

The hospitals/research institutions we are supporting as part of the Nurses Program are
  • Westmead Childrens Hospital and The Institute for Neuroscience and Muscle Research (INMR): Full time neuromuscular clinical nurse specialist position covering both clinical care and clinical trials
  • Murdoch Childrens Research Institute (MCRI) and Royal Childrens Hospital Melbourne: Clinical Trials Nurse now in place
  • Perth Childrens Hospital: Position is currently being established
  • Womens and Childrens Hospital Adelaide: Position is currently being established
  • Lady Cilento Childrens Hospital Brisbane: Currently finalising the official appointment with Queensland Health

To keep these nurses in place, we need your ongoing support. Help make a difference today and support the Save Our Sons Duchenne Foundation nurses.

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