AUSTRALIAN NEUROMUSCULAR DISEASE REGISTRY

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AUSTRALIAN NEUROMUSCULAR DISEASE REGISTRY

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RESEARCH WE FUND

The vast majority of funding Save Our Sons Duchenne Foundation is able to secure is through partnerships, events and fund raising campaigns and is allocated to a number of programs including research and clinical trial opportunities locally and abroad.
We hope that by providing these much-needed funds to the research community, we may one day find a cure for all those living with Duchenne and Becker muscular dystrophy.

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RESEARCH WE FUND

The vast majority of funding Save Our Sons Duchenne Foundation is able to secure is through partnerships, events and fund raising campaigns and is allocated to a number of programs including research and clinical trial opportunities locally and abroad.
We hope that by providing these much-needed funds to the research community, we may one day find a cure for all those living with Duchenne and Becker muscular dystrophy.

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ENHANCING QUALITY OF LIFE MEASURES

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ENHANCING QUALITY OF LIFE MEASURES

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NURSES PROGRAM

During late 2015, Save Our Sons Duchenne Foundation identified that one of the key barriers to bringing Duchenne clinical trials to Australia was the nationally under-resourced neuromuscular clinics. Busy hospitals across the nation could not allocate sufficient staff to facilitate the trials while still providing ‘Gold Standard’, ‘Best Practice’ clinical care for those with Duchenne.

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NURSES PROGRAM

During late 2015, Save Our Sons Duchenne Foundation identified that one of the key barriers to bringing Duchenne clinical trials to Australia was the nationally under-resourced neuromuscular clinics. Busy hospitals across the nation could not allocate sufficient staff to facilitate the trials while still providing ‘Gold Standard’, ‘Best Practice’ clinical care for those with Duchenne.

Learn More