1 September 2020

 

Save Our Sons commissioned the McKell Institute and Equity Economics to produce a keynote Report highlighting the main issues and challenges facing families of children and adults with Duchenne and Becker Muscular Dystrophy in Australia as they wait for a cure.

The Report helps to better understand how Duchenne and Becker impacts families, how we can ensure that new treatments benefit Australian’s sooner, and to better support those with the conditions today.

The Report was formally launched this morning by Dr Mike Freelander MP, Dr Katie Allen MP and a host of their Parliamentary colleagues. Watch out for their video messages of support to be shared tomorrow!

 

To read the statement and full Report, please click the links below:

Press Release – Keynote Report – Duchenne and Becker- Save Our Sons

McKell Institute – Equity Economics – Report into Duchenne and Becker – SOSDF – Final Version PDF