Telehealth Nurse – update


Save Our Sons Duchenne Foundation is part of a three-year pilot trial funded by the Federal Government.


The trial aims to help people with rare and debilitating diseases access support, treatments and clinical trials amid a malaise of confusion, red-tape and dead ends. There are 10 telehealth nurses stationed at 10 charities that support people with rare and complex conditions to connect them with the best-suited services and information specific to their diagnosis.


The trial is co-ordinated by the International Centre for Community-Driven Research (CCDR) and a steering committee of 8 organisations: Save Our Sons Duchenne Foundation, MS Australia, the Unicorn Foundation, Rare Voices Australia, SMA Australia, hearts4heart, Lymphoma Australia and Muscular Dystrophy WA.


Through this initiative, Save Our Sons Duchenne Foundation announced the launch of our Telehealth Case Manager Nurse Program in September 2019.


The program is especially aimed at those adults who have transitioned to adult services and do not have the same access to the coordinated services and support they were used to in the paediatric health system.


Michele Cowie from Perth is the Save Our Sons Telehealth Nurse. Michele has 18 years’ experience as a Registered Nurse in many different fields, most recently 12 years within a Critical Care Unit working collaboratively within the Intensive Care, Coronary Care and High Dependency unit.


Michele is available 25 hours a week via our designated 1300 number and email and will be able to answer questions, provide referrals and support those living with Duchenne and Becker muscular dystrophy, their families and carers.


Please make an appointment with Michele or contact her for assistance or to ask any questions you may have, by emailing her at or by calling 1300 798 328.