10 April 2020

Kat Arney, a biologist and award-winning science communicator, finds out why it is so important to ensure both academic and commercial research studies are done with rather than on participants, in the latest podcast of Genetics Unzipped.

Podcast panel members include Fiona Copeland (chair of a support group for UK families affected by primary ciliary dyskinesia or PCD), Patrick Short (CEO of Sano Genetics), and Shelley Simmonds (a disability rights campaigner and rare disease advocate).

To listen to the podcast: https://geneticliteracyproject.org/2020/04/10/podcast-nothing-about-me-without-me-the-importance-of-involving-patients-in-genomic-research/